Episodes
70
Latest episode
Aug 2026
Language
EN
Meet and hear from members of the American Brain Coalition and learn how collaborating our voices today, can save a brain tomorrow!
In this episode, ABC Executive Director Katie Sale speaks with Tammy Anderson, Executive Director of Wake Up Narcolepsy, about raising awareness, supporting patients and families, and advancing understanding of narcolepsy.
Katie Sale, Executive Director of the American Brain Coalition sits down with CurePSP's Jessica Shurer, Director of Clinical and Community Affairs, and Nora Wong, Associate Director of Public Policy, to discuss CurePSP's mission, the challenges facing individuals and families affected by progressive supranuclear palsy (PSP) and related neurodegenerative diseases, and the organization's work to advance research, advocacy, care, and support for the community.
Join American Brain Coalition Executive Director Katie Sale as she sits down with Leah Schust Myers, Executive Director and Founder of the FamiliesSCN2A Foundation. Together, they discuss the Foundation's mission to advance research, support families affected by SCN2A-related disorders, and foster collaboration to improve care and accelerate progress toward new treatments.
In this episode, Katie Sale, Executive Director of the American Brain Coalition, speaks with Jay Nichols, Vice President of Public Policy at the Tourette Association of America, about the importance of advocacy, public policy, and collaboration in advancing care, research, and support for individuals living with Tourette syndrome.
Join Katie Sale, Executive Director of the American Brain Coalition, and Meghan Donaldson, Chief Executive Officer of the Huntington's Disease Foundation, for a conversation on advocacy, collaboration, and advancing support for the brain disease community. In recognition of Huntington's Disease Awareness Month this May, the episode highlights the importance of partnership, education, and raising awareness for individuals and families impacted by Huntington's disease.
Katie Sale, Executive Director of the American Brain Coalition, sits down with Mary Anne Meskis, CEO of the Dravet Syndrome Foundation, and Shannon Cloud, the Foundation's Patient Advocacy Director, for a conversation on the origins and impact of DSF. They discuss why the organization was founded, the critical advocacy work it leads, and the resources it provides to support patients and families affected by Dravet syndrome.
In this episode, ABC Executive Director Katie Sale sits down with Jane Powell, CEO & Executive Director, and Alejandro Bruner-Solas, Program Manager from PWN4PWN, for an inspiring conversation about advocacy, community, and living with narcolepsy. Together, they explore empowering individuals through peer support, workforce development, and inclusive programming, while sharing personal insights on navigating life with sleep disorders.
In this episode, Katie Sale, Executive Director of the American Brain Coalition, is joined by Kris Corbett, RN, author of Bravely Bleeding and person with lived experience (PWLE) of Cerebral Cavernous Angioma; and Cornelia (Connie) Lee, PsyD, CEO of the Alliance to Cure Cavernous Malformation. Together, they explore the power of advocacy, the importance of patient voices, and the urgent need for awareness and innovation in addressing cavernous malformations.
In this episode of the ABC Podcast, we're joined by Rick Willis, President and CEO of the Brain Injury Association of America, for a conversation with Katie Sale, Executive Director of the American Brain Coalition. Together, they discuss the power of collaboration across the brain injury and brain disease communities and highlight advocacy priorities to advance research, improve care, and elevate the voices of people affected by brain conditions.
American Brain Coalition Executive Director Katie Sale is joined by Meghan Buzby, Director of Advocacy & Volunteer Engagement at the Association for Frontotemporal Degeneration, and AFTD Advocates Mary and Colin Gibney, a person with lived experience and her care partner. This conversation highlights the power of advocacy, the importance of elevating patient and caregiver voices, and the strength of collaborating together.
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Marvette Lacy, PhD
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