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The Other Side of MS

The Other Side of MS

Hosted by Casey Murphy

BusinessHealthFitnessInterviews guests

Episodes

88

Latest episode

Aug 2026

Language

EN

About the show

The Other Side of MS isn't here to inspire you—it's here to tell the truth. This podcast gives voice to the raw, unfiltered stories of people living with multiple sclerosis—the ones you rarely hear. Hosted by longtime MS advocate Casey Murphy, each episode pulls back the curtain on the emotional, invisible, and often uncomfortable realities of MS. From navigating public spaces with incontinence, to losing careers, marriages, or mobility, these aren't just stories of strength—they're stories of being human. We don't chase silver linings. We hold space for pain, for humor, for grief, for resilience—and for the voices that deserve to be heard without being sanitized or simplified. If you're ready for a podcast that doesn't sugarcoat the experience of living with MS, this is it. This is The Other Side of MS.

Listen to episodes

60 recent
August 13, 2026Episode 935 min

S4_E12: Whitney, Strong Whitney

On her birthday, Whitney had to be carried into an MRI. The next day came a phone call with good news and bad news. What followed would leave a personal trainer unable to trust the body she had spent years teaching others to strengthen. Today, Whitney wants people to see the version of her that rides, hikes, speaks publicly, and refuses to let MS define what she can still do. She calls her Strong Whitney . But there is another Whitney she is far less willing to show. What happens when being seen as strong becomes almost as important as actually feeling strong? Donate to Whitney's I Ride with MS: Bike MS Fundraiser https://events.nationalmssociety.org/participants/806581?referrer=mf%3A806581%3Ayou-copy&language=en

July 30, 2026Episode 1142 min

S4_E11: Karen Matingou: The 3 Day Rule

Karen listened as strangers described what MS was doing to their bodies. The details sounded familiar. Too familiar. For the next month, she told herself she was imagining it. The first neurologist gave her an easier answer. Then another doctor confirmed the one she had been trying not to believe. Karen decided MS would not beat her. But beneath that determination are three days she rarely lets anyone see, a fear she has never left behind, and a question that cuts deeper than any diagnosis: What happens when the person who always took care of everyone else becomes the one who needs help? Donate to Karen's MS fundraiser: https://events.nationalmssociety.org/participants/816829

July 16, 2026Episode 1042 min

S4_E10: Brandon Deen | Don't Ask How I'm Doing If You're Not Prepared to Hear the Answer

Brandon Deen knows what it feels like to be asked, "How are you?" without anyone truly wanting the answer. Diagnosed with multiple sclerosis while already living with PTSD and depression, he found himself navigating not only a chronic illness, but the loneliness of feeling unheard. In this episode of The Other Side of MS , Brandon reflects on what happens when people show up for the diagnosis but disappear during the journey. He talks openly about mental health, military service, relationships, advocacy, and the difference between someone listening and someone truly hearing you. This is a conversation about isolation, finding your voice, and why one simple question, "How are you?" can mean everything when someone is willing to stay for the answer. Support Brandon's Bike MS NYC Fundraiser: If Brandon's story resonated with you, consider supporting his Bike MS NYC fundraising efforts. Every donation helps advance research, advocacy, and programs for people living with multiple sclerosis. Support Brandon's Bike MS NYC Fundraiser

June 25, 2026Episode 934 min

S4_E9: Bridget Longnecker – Navigating Uncertainty with Resilience

For months, Bridget Longnecker was told her symptoms were anxiety, hormones, or postpartum depression. Meanwhile, she was losing vision, mobility, speech, and trust in herself. In this episode of The Other Side of MS , Bridget shares the reality of searching for answers while being repeatedly dismissed by healthcare providers, the psychological toll of being told it's all in your head, and the moment she finally received the diagnosis that changed everything. The conversation explores fear, motherhood, invisible illness, self-doubt, and what happens when you begin questioning your own reality because nobody else seems willing to believe it. Bridget also opens up about the lasting emotional impact of MS, the uncertainty that still follows her today, and why stability doesn't always mean feeling safe inside your own body. This is a conversation about trust, credibility, and the hidden psychological weight of living with a disease that many people never fully see. Support Resource: If Bridget's perspective on navigating uncertainty, chronic illness, and mental health resonated with you, and you're in the New Port Richey, Florida area seeking support, you can learn more about her counseling practice at: https://compasscounselingandwellness.com/

June 11, 2026Episode 837 min

S4_E8: Bill Mooney | The Version That's Easiest to Celebrate

People tell Bill Mooney he handles MS well. But what happens when everyone sees the resilience and almost nobody sees the fear, exhaustion, and uncertainty underneath it? In this episode, Bill talks about the parts of multiple sclerosis that rarely make it into fundraising speeches, awareness campaigns, or everyday conversations. The pressure to stay positive. The fear that never completely leaves. The emotional cost of explaining an invisible disease. This is a conversation about what people celebrate, what they miss, and what it really means to live with MS when the crowd goes home. Support Bill's Mission: If Bill's story resonated with you, consider supporting his Walk MS fundraising efforts. Every donation helps advance research, advocacy, and programs for people living with MS. Support Bill's Walk MS Fundraiser Now

May 28, 2026Episode 742 min

S4_E7: Dr. Mary Hughes — When MS Stops Being Clinical

Dr. Mary Hughes has spent decades treating multiple sclerosis, researching it, advocating around it, and helping shape the future of MS care. But long before MS became her professional focus, it became personal. Two of her sisters were diagnosed with the disease nearly thirty years apart, forcing Dr. Hughes to live in the uncomfortable space between neurologist and sister, between clinical expertise and the reality that sometimes even the expert cannot protect the people she loves. In this episode of The Other Side of MS , Dr. Hughes reflects on what those diagnoses changed inside her, how they shaped the direction of her career, and the emotional tension of spending a lifetime helping families navigate a disease she still cannot fully control herself. The conversation also explores the racial disparities that existed for decades in MS diagnosis and care, including the long-held belief that African Americans rarely developed MS. Dr. Hughes discusses how those assumptions delayed diagnoses, limited access to treatment, and forced difficult conversations inside both medicine and advocacy organizations. Dr. Hughes completed her internship and neurology residency at Emory University and later trained in Electrophysiology at the Medical College of Georgia. She founded the Augusta MS Center in 2002 and later served as Division Chair for Neurology at Greenville Health System, where she helped expand neurological care and develop curriculum for the system's medical school. From 2008 to 2019, she served on the National MS Society Board of Trustees and chaired the African American Advisory Committee. She was inducted into the National Multiple Sclerosis Society Health Professionals Volunteer Hall of Fame in 2015 and continues to advocate for greater access to care, clinical trials, and patient education through her work at Premier Neurology. This is a conversation about medicine, family, advocacy, uncertainty, and what happens when your life's work becomes inseparable from the people you love. Support the Mission: If you would like to support the mission of the National MS Society, you can support one of the individuals who ride for MS at https://www.theothersideofms.com/about-bike-ms . They ride for MS. Your donation fuels the mission.

May 14, 2026Episode 627 min

S4_E6: Rachael Fenich - Facing MS Together

Rachael has seen multiple sclerosis from more than one angle. Her husband lives with it. So do other members of her family. Over time, what she thought she understood about MS has changed in ways she didn't expect. In this conversation, Rachael talks about what MS actually looks like inside a marriage. The parts you don't see. The things that don't get said. What happens when one person is "house planting" and the other is trying to understand how to respond. They talk about communication, frustration, and the quiet ways both people hold things back to protect each other. Rachael also shares what changed when she faced her own autoimmune diagnosis, and how that shifted the way she understood what her husband had been carrying all along. This is not a story about inspiration. It's about learning how to live inside something you didn't choose, together. Rachael Fenich serves as the Executive Director of the Georgia Chapter of the National Multiple Sclerosis Society. Helpful Links Donate to the Bike MS Georgia Ride Learn more about the Bike MS Passport Program Join Bike MS. Find a Ride Near You

April 30, 2026Episode 541 min

S4_E5: Mark Morabito | "You Didn't Sign Up for This"

Mark Morabito looked at his wife in a hospital room and told her she could leave. He had just been diagnosed with MS. And in his mind, he already knew how it would end. In this episode, Mark doesn't hold back. He talks about growing up watching his mom live with MS, believing it was a slow decline you couldn't escape. He shares the fear of becoming her, the regret of what he wishes he had known sooner, and the moment everything shifted. We push on the idea of "mind over matter." Because for some, that mindset feels empowering. For others, it feels like a lie. This is not a clean story. It's tension, contradiction, and truth in real time. What does it mean to fight a disease you can't control? And where is the line between strength and reality? Listen in. Support Mark in Walk MS: https://events.nationalmssociety.org/participants/890235

April 23, 2026Episode 424 min

S4_E4: Justin Yuhaze - Some Days Are Tougher Than Others

"Some days are tougher than others." Justin Yuhaze was diagnosed with MS just days before the birth of his second daughter. In this episode, he talks about the months that followed, the symptoms he tried to hide, the depression he did not always want to name, and the moments that pushed him toward deeper conversations instead of avoiding them. Justin also shares what it has meant to raise two daughters who have only ever known him with MS and the choices he makes to stay active and present in their lives. Donate to Justin's Bike MS Fundraiser: Justin is riding in Bike MS: City to Shore Ride 2026 as the team captain of Muggles on a Mission. Help him reach his goal of raising $5,000 for the National MS Society. Support his fundraiser here: https://events.nationalmssociety.org/participants/784914

April 16, 2026Episode 332 min

S4_E3: Tyler Saldutti - Define Me By This

"People will abandon you. They will come up with whatever they need to justify it." Tyler was diagnosed with primary progressive MS in 2013, and the impact reshaped every part of his life. His marriage ended, relationships shifted, and the identity he built as a Division I athlete began to fall away. In this episode, Tyler talks about nine years of denial, the people who stepped back when MS became too heavy for them to hold, and the isolation that comes from realizing you do not get MS alone. He also shares what it is like to have two young daughters who now listen closely when an Ocrevus commercial comes on, trying to understand what the medication might mean for their dad. This is not a story about silver linings. This is a story about truth.

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