The HDSA Podcast

Hosted by Huntington's Disease Society of America

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Episodes

Latest episode

Aug 2026

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EN-US

About the show

The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved.

Listen to episodes

16 recent

August 18, 2026Episode 743 min

S4:E7 Let's Talk about IVF and PGDIVF

Send us Fan Mail In this episode of the HDSA Podcast, hosts Tam, MaryAnn, and Allison are joined by special guest Erin Paterson for an open and informative conversation about in vitro fertilization (IVF) and preimplantation genetic testing/Diagnosis (PGD) for families impacted by Huntington’s disease. Emily shares her perspective and experience while the group explores what the IVF and PGD process can look like, why individuals and couples may consider these options, and some of the emotional, financial, and practical realities that can come with family planning in the HD community. As always, the conversation is candid, compassionate, and centered on helping families better understand the choices that may be available to them. Whether you are considering IVF and PGD, supporting someone who is, or simply want to learn more about reproductive options for families affected by Huntington’s disease, this episode offers an approachable starting point for the conversation. This podcast is for educational purposes only and is not intended to provide medical advice. Individuals considering IVF, PGD, or other reproductive options should speak with qualified medical and genetic counseling professionals. Don't forget to follow us on social media!

August 14, 2026Episode 617 min

S4:E6 Let's Talk About the Grey Area : Part 2

Send us Fan Mail In Part 2 of Grey Area , the HDSA Podcast team continues the conversation with researchers Chris Kay, PhD, and Jessica Dawson, PhD, diving even deeper into the complexities of Huntington’s disease genetics. The conversation explores why HD may be diagnosed more often today, what researchers are learning about loss-of-interruption variants, and why a CAG repeat number may not always tell the full story. Chris and Jessica also explain the limitations of current diagnostic testing, the role of genetic counselors and HD specialists, and ongoing research aimed at better understanding sequence variants in people with reduced penetrance CAG repeats. The group also discusses research-based testing underway through the HD Biobank at the University of British Columbia and why continued research could help improve how these complex genetic results are understood in the future. Join Tam, Allison, Marianne, Chris, and Jessica as they continue navigating the fascinating—and sometimes unexpected—grey areas of Huntington’s disease genetics. Don't forget to follow us on social media!

August 11, 2026Episode 531 min

S4:E5 Let's Talk About the Grey Area: Part 1

Send us Fan Mail What happens when a Huntington’s disease genetic test result doesn’t look the way you expect? In Part 1 of Grey Area , the HDSA Podcast team is joined by researchers Chris Kay, PhD, and Jessica Dawson, PhD, to explore the complexities of HD genetics. Using a Reddit post as the starting point, the group breaks down CAG repeat lengths, intermediate alleles, reduced penetrance, inheritance, and why genetic test results aren’t always as straightforward as they may seem. Join Tam, Allison, Marianne, Chris, and Jessica for a fascinating and approachable conversation about the “grey areas” of Huntington’s disease genetics—and the questions that can send even HD researchers down a rabbit hole. Don't forget to follow us on social media!

July 10, 2026Episode 447 min

S4:E4 - Tell Allison What She Missed at the HDSA Annual Convention

Send us Fan Mail Allison couldn’t make it to Convention, so Tam and Maryann are filling her in on everything she missed! From powerful sessions and community moments to key updates, inspiring stories, and behind-the-scenes highlights, this episode recaps the energy, connection, and hope that made this year’s HDSA Annual Convention so meaningful. Don't forget to follow us on social media!

May 29, 2026Episode 335 min

S4:E3 - Let's Talk About HD Awareness Month Part 2

Send us Fan Mail In this episode of Let’s Talk About HD , hosts Tam Maiuri and MaryAnn Emerick are joined by Paul, Hannah, Rachel, Emily, Jenna, and Mariana for a meaningful conversation about Huntington’s disease, community, connection, and the experiences that shape the HD journey. Together, they share personal perspectives, reflect on the importance of support, and highlight the power of open conversation in helping families feel seen, heard, and less alone. This episode reminds us that every HD story matters—and that by talking about HD, we continue to build awareness, understanding, and hope. Don't forget to follow us on social media!

May 18, 2026Episode 227 min

S4:E2 - Let's Talk About HD Awareness Month with Tam, Allison & MaryAnn

Send us Fan Mail Let’s Talk About HD Awareness Month with Tam, Allison & MaryAnn In this episode of Let’s Talk About HD , we recognize Huntington’s Disease Awareness Month with a meaningful conversation featuring Tam, Allison, and MaryAnn. Together, they reflect on the importance of raising awareness, and discuss how storytelling, advocacy, and community support help shine a light on the experiences of HD families. Throughout the conversation, Tam, Allison, and MaryAnn highlight why awareness matters, not only in May, but all year long, as HDSA continues working to provide help for today and hope for tomorrow for everyone impacted by Huntington’s disease. Don't forget to follow us on social media!

April 23, 2026Episode 127 min

S4:E1 - Let's Talk About HD with Tam, Allison & MaryAnn

Send us Fan Mail Meet the new hosts of the HDSA Podcast: Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement; Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services. Together, they bring expertise, insight, and a deep commitment to the Huntington’s disease community. Don't forget to follow us on social media!

February 12, 2025Episode 122 min

S3:E1- Let's Talk About Volunteering with HDSA

Send us Fan Mail In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share personal experiences, tips for making an impact, and why volunteers are the heart of the organization. Whether you're looking for ways to give back or just curious about HDSA’s mission, this conversation is packed with inspiration and practical advice. Don't forget to follow us on social media!

December 2, 2024Episode 524 min

S2:E5 Let's Talk about the HD ELPFDD Meeting

Send us Fan Mail In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collaborative efforts shaping the next steps. Join us as they outline action plans, share community feedback, and discuss strategies for addressing the pressing challenges and opportunities identified during the meeting. Whether you attended the ELPFDD or are catching up on what you missed, this episode is packed with valuable insights to keep you informed and engaged in the journey ahead. Tune in to stay in the know and discover how you can contribute to the path forward! Don't forget to follow us on social media!

October 18, 2024Episode 422 min

S2:E4 - Let's Talk About POWERHD

Send us Fan Mail In today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and MaryAnn Emerick, LMSW, Manager of Youth & Community Services at HDSA. Tune in for an insightful conversation! Don't forget to follow us on social media!