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Retina UK

Retina UK

Hosted by Retina UK

Episodes

274

Latest episode

Oct 2026

Language

EN

About the show

Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.

Listen to episodes

60 recent
October 23, 202659 min

Webinar: protecting your remaining vision: eye health, low vision support and practical advice

Many people with inherited retinal dystrophies (IRDs) ask what they can do to protect their remaining vision and maintain good eye health. In this informative webinar, we'll explore practical steps you can take to support your sight and make the most of the vision you have. Led by Louise Gow, Head of Eye Health, Optometry and Low Vision at the RNIB, this session will cover the importance of regular eye examinations and hospital appointments, recognising changes in your vision, and understanding when and where to seek help. We’ll also discuss low vision adaptations, reducing glare, choosing suitable glasses and glare shields, UV protection, eye safety, and wider lifestyle factors that support overall eye health. Whether you’re newly diagnosed or have been living with sight loss for many years, this webinar will provide practical advice and information to help you feel confident in managing your eye health. Topics covered: - Why regular eye tests and hospital appointments matter - Recognising changes in vision and red flag symptoms - When and where to seek help - Low vision adaptations and support - Managing glare and choosing appropriate glare shields - UV protection and eye safety - Healthy lifestyle choices that support eye health - Making the most of your remaining vision

October 16, 202637 min

Podcast: The Blind Stylist: Tilly Dowler on fashion, confidence and living with stargardt disease

In this episode of the Retina UK Podcast, we sit down with Tilly Dowler, known to many on social media as @the_blind_stylist . Living with stargardt disease, Tilly uses her platforms to share honest insights into life with sight loss while challenging common misconceptions about visual impairment. We discuss her diagnosis, her journey to becoming more confident about her sight loss, and how she built a supportive online community through social media. Tilly also shares her passion for fashion and beauty, offering practical advice for maintaining personal style, applying makeup, and building confidence after sight loss. The conversation explores her career journey, from running her own boutique to launching a new online styling service, as well as the importance of disability representation in the fashion and beauty industries.

October 14, 202611 min

E-Newsletter October 2026

Our monthly e-Newsletter featuring the latest updates from Retina UK.

September 23, 202643 min

Annual Conference 2026 - Latest developments in stem cell derived therapies

Professor Robin Ali, Director of the Centre for Gene Therapy & Regenerative Medicine, KCL.

September 23, 20261 min

Annual Conference 2026 - Closing remarks

Tina Garvey, Chief Executive, Retina UK.

September 23, 202627 min

Annual Conference 2026 - Income to impact: the difference you can make

Stories from some of our fantastic fundraisers. Jess Mortlock, Interim Director of Income Development. Tam Sanford and Lisa Sanford, who have a child living with inherited sight loss.

September 23, 202646 min

Annual Conference 2026 - From innovation to independence: assistive technology for inherited sight loss

Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.

September 23, 202644 min

Annual Conference 2026 - The participant perspective – reflections on taking part in clinical studies

Tina Garvey, Chief Executive, Retina UK. Professor Martin McKibbin, Consultant Ophthalmologist, University of Leeds. James Moore, who is living with inherited sight loss. Bhavna Tailor, Chief Executive, Stargardts Connected and Ethan Tailor, who is living with inherited sight loss.

September 23, 202642 min

Annual Conference 2026 - Understanding clinical trials and potential new therapies – what’s in the pipeline?

A panel with representatives from biotechnology companies Sepul Bio, Alkeus and AAVantgarde.

September 23, 20265 min

Annual Conference 2026 - Welcome from our CEO

Tina Garvey, Chief Executive, Retina UK.

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