196: Lived Experience as Expertise
Send us Fan Mail A single sentence in a study can either invite someone into healing or push them back into pain. That is why we are getting specific about lived experience in scientific research, and why community advisory board should not be an afterthought when the topic is trauma, PTSD, and recovery. We share what it feels like to transition from a community advisory board member to the lead lived-experience expert on a Mass General study team. The work is exciting because it is, and also brings some self-doubt when you are sitting in Zoom rooms with psychiatrists, epidemiologists, biostatisticians, and researchers who speak in acronyms. We unpack the moment it clicks: fluency in professional language is not the only knowledge that counts. Data can tell you what happens, but it cannot tell you what it feels like to be the data. From safer research language to better questions and more ethical human-subjects work, we explain how lived-experience expertise functions as translation. We also zoom out to a bigger point for any organization: Your team already includes people with hard-won insights, but have you built a way to actually hear them? If this made you rethink what expert means, subscribe for more, share this with someone in research or healthcare, and leave a review so more listeners can find Notes on Resilience. Buzzsprout - Let's get your podcast launched! Start for FREE Support the show __________ Producer / Editor: Neel Panji Invite Manya to inspire and empower your teams and position your organization as a forward-thinking leader in well-being, resilience, and trauma sensitivity. Learn more: www.manyachylinski.com/services Subscribe to the newsletter: manyachylinski.com/notes Please subscribe, rate, and review the podcast on Apple Podcasts or your listening platform of choice. It really helps others find us. #trauma #resilience #compassion #MentalHealth #CompassionateLeadership #leadership #survivor

