HAE Speaks

Hosted by US HAEA

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Oct 2026

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About the show

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

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October 21, 202637 min

Nina's HAE Treatment Journey

This month’s episode of HAE Speaks provides insight into living with hereditary angioedema (HAE) and treatment with TAKHZYRO® (lanadelumab-flyo), a prescription medicine used to prevent attacks of HAE in people two years of age and older. Join Chaeli Wallace, Takeda’s Senior Manager for Patient Community and Education, as she interviews Nina, a person living with HAE, about her journey from diagnosis to treatment with TAKHZYRO. Thank you to Takeda for sponsoring this episode! What is TAKHZYRO? TAKHZYRO (lanadelumab-flyo) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in people 2 years of age and older. It is not known if TAKHZYRO is safe and effective in children under 2 years of age. IMPORTANT SAFETY INFORMATION TAKHZYRO may cause serious side effects, including allergic reactions. Call your healthcare provider or get emergency help right away if you have any of the following symptoms: wheezing difficulty breathing chest tightness fast heartbeat faintness rash hives The most common side effects seen with TAKHZYRO were injection site reactions (pain, redness, and bruising), upper respiratory infection, headache, rash, dizziness, diarrhea, and muscle aches. These are not all the possible side effects of TAKHZYRO. For more information, ask your healthcare provider or pharmacist. You may report side effects to FDA at 1-800-FDA-1088. TAKHZYRO has not been studied in pregnant or breastfeeding women. Talk to your healthcare provider about the risk of taking TAKHZYRO if you are pregnant, plan to be pregnant, are breastfeeding, or plan to breastfeed. Please see full Important Safety Information within the podcast and full Prescribing Information for TAKHZYRO here.

October 6, 202623 min

Choosing Coverage with Confidence: An HAE Patient's Guide to Open Enrollment with CSL

Learn what to consider when choosing a health insurance plan during Open Enrollment. The conversation covers medication coverage, prior authorizations, specialty pharmacies, out-of-pocket costs, provider networks, and helpful questions to ask before selecting a plan. Sponsored by: CSL

October 6, 202617 min

End of Year Legislative Update: What it Means for the HAEA Community

In this episode, HAEA Advocacy Director, Jess Myers, sits down with Dane Christiansen, the Managing Partner of the Health and Medicine Counsel of Washington, for a special end-of-year legislative update. Together, they discuss what has happened this year in healthcare policy, key issues impacting the HAEA community, and how you can support these HAEA Advocacy efforts.

October 6, 20267 min

Transitioning to Medicare: Helpful Insights from the HAEA Health Team

In this episode, two compassionate advocates for the health and wellbeing of our community, Troyce Venturella, HAEA Director of Health & Research Services, and Mandy Granat, HAEA Health Services Manager, discuss what individuals living with HAE should consider when transitioning to Medicare. The conversation explores enrollment timelines, Medicare plan options, medication coverage, financial assistance, and resources available to help individuals research their options and plan ahead.

August 20, 202614 min

HAE Speaks: Roundtable with the CEO - Tony Has a Conversation with a CSL Executive Director

In this new HAE Speaks Podcast series, Tony (HAEA CEO & Chairman of the Board) sits down with Tom Groeling, Executive Director of Specialty Franchise at CSL. Together, they discuss CSL's long-standing commitment to the HAE community and the company's vision for advancing care. The conversation also explores CSL's HAE therapies, ANDEMBRY® and HAEGARDA®, and provides an overview of their intended use, key features, and available support programs. Note: This podcast is for educational purposes only and is not meant to provide medical advice. The HAEA is company- and product-neutral. We don’t endorse specific therapies and we don’t compare products. Treatment comparisons and selection are the sole responsibility of people with HAE and their physicians. Sponsored By: CSL

August 1, 202617 min

Stronger Together: One Family's HAE Journey

In this month's episode of the HAE Speaks Podcast, the Warner-Mukes family shares their journey of living with Hereditary Angioedema (HAE) together. From navigating diagnosis and treatment to supporting one another through the challenges of daily life, they offer an honest conversation about what it means to face HAE as a family. Through their shared experiences, listeners will gain insight into the power of resilience, the importance of understanding each family member's perspective, and the strength that comes from navigating HAE together. Thank you to our 2026 Sponsors: BioCryst, CSL, IONIS, and Takeda

June 10, 20266 min

Summer Safety Tips with the HAEA Health Team

Join HAEA Director of Health & Research Services, Troyce Venturella, and HAEA Health Services Manager, Mandy Granat, as they discuss important summer safety considerations for individuals and families living with HAE. The conversation is designed to help the HAEA community stay safe, healthy, and prepared while enjoying summer activities with family and friends! Thank you to our 2026 Sponsors: BioCryst, CSL, IONIS, and Takeda

May 13, 202618 min

Roundtable with the HAEA CEO – A Conversation with KalVista’s Chief Commercial Officer

In this new HAE Speaks Podcast series, Roundtable with the CEO , HAEA CEO & Chairman of the Board, Tony Castaldo, sits down with Nicole Sweeny, Chief Commercial Officer at KalVista Pharmaceuticals. Tony and Nicole discuss KalVista’s mission and aspirations for the future health of the HAEA community. They also address EKTERLY® , a newly approved oral, on-demand HAE treatment option, and provide practical insights into KalVista’s programs for access, insurance coverage, and efforts to expand treatment options for children. Note: This podcast is for educational purposes only and is not meant to provide medical advice. The HAEA is company- and product neutral. We don’t endorse specific therapies and we don’t compare products. Treatment comparisons and selection are the sole responsibility of people with HAE and their physicians. For more information, please visit www.haea.org . Sponsored By: KalVista Pharmaceuticals

May 8, 202626 min

Perspectives from a Mother and Daughter with HAE

In this episode of HAE Speaks, Cheryl and her daughter Leah share their powerful journey living with hereditary angioedema (HAE) across generations. Together, they open up about navigating diagnosis, managing life with HAE, and the unique perspective of both a parent and child living with the condition. They also highlight the importance of advocacy, both within the healthcare system and the broader community, and offer insight into how others can get involved, raise awareness, and make a meaningful impact. Sponsored by: BioCryst Pharmaceuticals

February 26, 2026Episode 6230 min

Supporting Adult Scholars in the HAE Community: Tina's Story

In this episode, we hear from Tina S., an individual living with HAE and an adult recipient of the Pam King HAEA Scholarship. Tina shares her journey, the impact of the scholarship, and how educational support can make a difference for individuals affected by HAE, regardless of age or stage of life. Learn more about the HAEA Scholarships by visiting: https://www.haea.org/pages/p/scholarships Thank you to our 2026 sponsors: BioCryst, CSL Behring, IONIS Pharmaceuticals, and Takeda.