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Endpoints

The Endpoints Podcast features guests from the ALS community, including people living with ALS, researchers, advocates and fundraisers. Each episode cuts to the chase with short, digestible conversations about the latest research at ALS TDI and the most closely watched ALS clinical trials as well as stories from people living with ALS with their thoughts on research, healthcare and their journey with ALS.

The Endpoints Podcast is hosted by the ALS Therapy Development Institute (ALS TDI) the world's foremost drug discovery lab focused solely on ALS. ALS TDI is a non-profit biotech with one mission. End ALS.

To access all episodes of the Endpoints Podcast, visit als.net/endpoints.

Last Episode Date: 1 May 2024

Total Episodes: 59

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1 May 2024
Kids Quest to Cure ALS: Getting Young People Involved in the Fight Against ALS

Kids Quest to Cure ALS is an organization for kids, by kids. Their mission is to get young people involved in the fight against ALS. The group was founded by kids in the US and Canada – all of whom have been affected by a loved one’s ALS diagnosis. They are encouraging ...

11 min
12 February 2024
Many Shades of ALS: Supporting People of Color with ALS

One of the most common misconceptions about ALS is that it only affects older white men. In reality, the disease can affect anyone of any age – and of any ethnicity. Many Shades of ALS, a team within the I AM ALS organization, is working hard to dispel some of these misco...

20 min
31 October 2023
Roon: A New App for Navigating ALS with Help from Experts

When dealing with a disease like ALS, it can be hard to know where to turn for reliable information and advice. While your doctor and care team might be able to provide some answers to your questions, there are many topics that they might not be equipped to handle. There are...

25 min
29 September 2023
Endpoints Shorts: Dr. Nadia Sethi on PTC Therapeutics PTC 857

Welcome to the latest episode of Endpoints Shorts, presented by the ALS Therapy Development Institute. In these bite-size podcasts, we’ll be tackling important scientific concepts for people interested in ALS research, current clinical trials, and news from around the ALS...

5 min
15 September 2023
Go On, Be Brave and Hope Fights Back: Andrea Lytle Peet on Her New Film and Book

Andrea Lytle Peet’s passion for running started simply enough. At age 30, she had just moved to Washington, D.C. to be with her husband, David. Stuck in their house during the snowy D.C. winter, she started walking on a treadmill in their basement to keep active. Soon, she...

16 min
1 September 2023
Could Accelerometers Provide More Sensitive Measures of ALS than the ALSFRS-r?

Finding more accurate ways to measure ALS progression is one of the most important challenges facing scientists today. More sensitive, objective ways of measuring how the disease is affecting people could help make clinical trials faster and more efficient. Achieving this is...

19 min
18 August 2023
ALS TDI and Unite Genomics Partner to Bring Electronic Health Record Data into the ARC Study

ALS TDI’s ALS Research Collaborative (ARC) is a global initiative that partners with people with ALS to gather data about the disease to help us better understand the underlying biology of ALS and accelerate the discovery of treatments. Recently, ALS TDI announced a part...

22 min
4 August 2023
Endpoints Shorts: Dr. Nadia Sethi on Novartis Pharmaceuticals' BLZ945

Welcome to the latest episode of Endpoints Shorts, presented by the ALS Therapy Development Institute. I’m Jonathan Gang. In these bite-size podcasts, we’ll be tackling important scientific concepts for people interested in ALS research, current clinical trials, and new...

5 min
24 July 2023
Endpoints Shorts: Dr. Nadia Sethi on AL-S Pharma's AP-101

Welcome to the latest episode of Endpoints Shorts, presented by the ALS Therapy Development Institute. In these bite-size podcasts, we’ll be tackling important scientific concepts for people interested in ALS research, current clinical trials, and news from around the ALS...

6 min
6 July 2023
Endpoints Shorts: Dr. Nadia Sethi on Annexon's ANX005

Welcome to the latest episode of Endpoints Shorts, presented by the ALS Therapy Development Institute. In these bite-size podcasts, we’ll be tackling important scientific concepts for people interested in ALS research, current clinical trials, and news from around the ALS...

5 min
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