Champions for HD Podcast

Hosted by Shelby Lentz

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Latest episode

Mar 2024

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About the show

Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.

Listen to episodes

31 recent

March 27, 2024Episode 21 hr 48 min

A Raw Conversation About Living Gene Positive - with Charlotte Conn

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.Follow Champions/External links:linktr.ee/championsforhdWebsiteFollow Shelby:https://www.shelbylentz.com/linktr.ee/shelby_lentzIn their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.Support the show

September 8, 2021Episode 1322 min

I wrote a children's book! Brave Breanna: How One Girl Smiled Her Way Through Juvenile Huntington's Disease

Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show (https://www.championsforhd.org/donate)Support the show

May 16, 2020Episode 257 min

An Open Conversation About Mental Health & Turning Adversity into Advocacy with @ImNotDrunkLifeStyleBlog

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke. We discuss mental health with HD as a caregiver, setting boundaries, and talking the opportunity to educate against hurtful HD stereotypes and stigma. Ashley was inspired to begin her blog #ImNotDrunkLifestyleBlog after her father, who suffers from HD, was mistakenly called out in a crowd by a stranger for being "horribly drunk." Now she uses her blog as an outlet for her own mental health and as a learning tool for those who are misinformed about Huntington's Disease.Follow Ashley:https://www.facebook.com/imnotdrunkblog/https://www.imnotdrunklifestyleblog.co.uk/https://www.instagram.com/imnotdrunklifestyleblog/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show

November 2, 2021Episode 151 hr 50 min

The Stages of Huntington's Disease Progression - Growing up with HD Trauma as a Child - With Jessica Geraghty

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life living gene positive. Listen to Jessica's full episode to hear more about how she is a Champion for HD!Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Follow Domonique:https://www.instagram.com/niqueclaire2/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show (https://www.championsforhd.org/donate)Support the show

September 17, 2021Episode 141 hr 2 min

An Open Conversation about HD Mental Health and Suicide - How to Overcome the Darkness with Domonique Link

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her life with a positive diagnosis and the importance of mental health in the HD community. Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Follow Domonique:https://www.instagram.com/niqueclaire2/ Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show (https://www.championsforhd.org/donate)Support the show (https://www.championsforhd.org/donate)Support the show

May 12, 2021Episode 1032 min

Are there any benefits to testing for Huntington's Disease?

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today we are deep diving into potential benefits of getting tested for Huntington's Disease. This question was left as a comment on our social media post today and it gave me the idea to come on here and talk about what benefits I have found about testing myself. This is personal, please do make sure to seek help from a professional as well. Your genetic counselor and therapist are key resources to lean on before you go through the test results. Thank you to the woman who left the comment on our post. You inspired this episode! I hope you find this helpful.Shelby 'Support the show

April 16, 2023Episode 21 hr 29 min

The Champions for HD Podcast - Speech-Language Pathology with Paige Wikman

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or email her at (wikman.p@northeastern.edu) Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F...Apple Podcast Link: https://podcasts.apple.com/us/podcast...Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsfo...https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show

April 3, 2022Episode 32 hr 26 min

Catching up With Londen & Autumn Tabor - Autumn's Sweet 16 and more!

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting. Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD.I hope you enjoy our conversation. Follow Londen and Autumn:https://www.instagram.com/londenandautumn/ https://www.tiktok.com/@londenandautumn?lang=enFollow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show (https://www.championsforhd.org/donate)Support the show

March 28, 2022Episode 21 hr 45 min

Living Life Gene Positive with Samantha Peterson

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for herself, but her children. Listen to the episode to hear more about how Samantha is a Champion for HD!Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Follow Samantha:https://www.instagram.com/samantha_juliannaa/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show (https://www.championsforhd.org/donate)Support the show

March 3, 2021Episode 543 min

Continuing to Fight Back Despite the Onset of Symptoms - Heather Hankard

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Heather is one of our Champions for HD donation recipients. She joins us to share her story with her diagnosis of Huntington's Disease, and how she continues to keep fighting despite having symptoms. She shares the highs and the lows as well as how her donation from Champions for HD has helped her during her battle against HD.Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the showhttps://www.championsforhd.org/donateSupport the show (https://www.championsforhd.org/donate)Support the show