
Beyond the Clinic: What Patients and Caregivers Need Most in NET Care
In this episode of NETCast, we explore the patient and caregiver experience beyond the clinic walls and examine what truly patient-centered care looks like within the neuroendocrine tumor community. Hosted by Dr. Daniel Halperin and featuring leaders from the Neuroendocrine Tumor Research Foundation and Neuroendocrine Cancer Foundation, this conversation focuses on the emotional realities of living with NETs, caregiver advocacy, the importance of community and peer support, and how healthcare teams can better support patients and families throughout the disease journey. Together, the panel shares practical insights and personal perspectives on building trust, reducing isolation, and improving quality of life in rare disease care. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info .
