HippraConnects

Hosted by Hippra Podcast

Episodes

Language

EN-US

About the show

Welcome to HippraConnects where we give a voice to those battling complex illnesses, challenging medical conditions or rare diseases and the healthcare providers who treat them as well as the support system that nurtures and sustains them.

Listen to episodes

23 recent

28 min

21. A Chat with Corben Parker, U.S. Army Veteran, Nurse, and Rare Disease Patient

This episode is a fascinating conversation with Corben Parker, US Army veteran, nurse, and patient. In 2021, Corben was diagnosed with a rare neurological disease called complex regional pain syndrome and has since become involved with the Everylife Foundation for Rare Diseases. In his story, Corben discusses his advocacy and commitment to treatment modalities that are outside conventional medicine for those with rare or difficult to treat illnesses. We thank him for his service, for his advocacy and for sharing his journey!

27 min

20. Stephanie Riordan and the Everylife Foundation for Rare Diseases

Join us for this fascinating look at the Everylife Foundation for Rare Diseases. In this episode, we are pleased to welcome Stephanie Riordan, Senior Director of Patient Programs at EveryLife Foundation as she shares information about how this program functions at the intersection of art and health. Through creative expression, the community translates lived rare disease experience into advocacy, storytelling, and public impact. For more information, please click here.

17 min

19. Laura Byer of the Alzheimer's Association of the National Capital Area - Part II Holiday Travel with Alzheimer's Patients

Join Laura Byer, Program Manager of the Alzheimer's Association of the National Capital Area for an informative discussion aimed at those supporting individuals with Alzheimer's with tips for helping dementia and Alzheimer's patients when traveling during the holiday season. Learn about the resources offered by the Alzheimer's Association of the National Capital Area and valuable tips for engaging with someone with this progressive disease that not only impacts the individual, but the family and friends who care for them. Contact the Alzheimer's Association: https://www.alz.org/ or call their helpline: 800.272.3900.

26 min

18. Laura Byer of the Alzheimer's Association of the National Capital Area

Join Laura Byer, Program Manager of the Alzheimer's Association of the National Capital Area for an informative discussion aimed at those supporting individuals with Alzheimer's. Learn about the resources offered by the Alzheimer's Association of the National Capital Area and valuable tips for engaging with someone with this progressive disease that not only impacts the individual, but the family and friends who care for them. Contact the Alzheimer's Association: https://www.alz.org/ or call their helpline: 800.272.3900.

40 min

17. A Chat with Epidemiologist, Dr. Tammy Smith

Dr. Tammy Smith serves as the Regional Epidemiologist with the Communicable Disease Branch at the Department of Public Health in Raleigh, NC. Dr. Smith is also the CEO and President of Inspired Now Networks, Inc., a nonprofit organization focused on health awareness, education, and research.Dr. Smith has a Doctorate of Public Health and an extensive background in research and public health. She has worked at Duke University Medical Center, where she co-authored multiple publications. She brings to HippraConnects important information and awareness of infectious diseases, prevention and important public health intitiatives.

29 min

16. An Informative Conversation on Orthopedics, Healthcare Disparities and Treatment Challenges in Underserved Communities.

In this episode, we chat with two individuals committed to the study and practice of Orthopedic Medicine, Dr. Oluwadamilola Kolade an Ortho resident at Howard University and Ms. Moriah Martindale, a medical student at the University of Buffalo. Their focus is on sharing important information about orthopedics and addressing healthcare disparities/barriers to treatment in underserved communities.

17 min

15. Reproductive Health Impact with Rev. Deneen Robinson

Rev. Deneen Robinson discusses Reproductive Health (RH) Impact and the Collaborative for Equity & Justice, a fiscally sponsored program of The Praxis Project, a 501(c)(3) public charity. RH Impact is one of the nation’s leading experts and an advocate for change in the Black maternal health and infant mortality crises. RH Impact works to create transnational solutions that optimize Black maternal, infant, sexual, and reproductive wellbeing. RH shifts systems and culture through training, research, technical assistance, policy, advocacy, and community-centered collaboration. To learn more visit www.rhimpact.org for more information. Follow them on these social media channels:FB/Meta: rhimpact_YouTube: rhimpact_IG: rhimpact_TikTok: rhimpact_LinkedIn: Reproductive Health ImpactSubscribe to their Newsletter: www.rhimpact.org

24 min

14. Amniotic Fluid Embolism Foundation with Executive Director, Miranda Klassen.

In this podcast, we welcome Miranda Klassen, Executive Director of the Amniotic Fluid Embolism Foundation (AFE), for an enlightening and valuable discussion of a condition that may severely impact the health of pregnant women. Amniotic Fluid Embolisms occur when a mother has an allergic-like immune response to amniotic fluid or fetal material that enters her bloodstream during labor or after. This birth complication can be life-threatening to both mother and baby. The Amniotic Fluid Embolism Foundation (AFE) works to spread awareness, provide resources, support impacted families, and educate medical professionals. You can learn more about the AFE Foundation at afesupport.org.

36 min

13. Fetal Health Foundation with Co-Founder, Lonnie Somers

We are so pleased to have with us, Lonnie Somers, Co-Founder of The Fetal Health Foundation. The Fetal Health (or Hope) Foundation’s mission is to support families receiving a fetal syndrome diagnosis. fetalhealthfoundation.org. The foundation provides life-saving research, increases the awareness of fetal syndrome and shares leading medical information on this disorder. Learn more about the fascinating story of Lonnie and his wife, Michelle’s journey and discovery as parents of twin girls diagnosed with a fetal syndrome disorder. The parents went on to become founders of the Fetal Health Foundation to help other parents experiencing similar circumstances. https://www.fetalhealthfoundation.org/story/our-founder-s-story/.

24 min

12. 5 P Minus Society Interview with Executive Director, Laura Castillo

We are quite pleased to present Laura Castillo, Executive Director of the 5 P Minus Society. The 5 P Minus Syndrome is a disorder of chromosome deletion that impacts a small number of children in this country (50-60). Also known as Cri du Chat Syndrome, it is typically accompanied by physical and developmental delays often requiring life-time support for those impacted. The 5 P Minus Society provides crucial education, information and support for these families. Please support their efforts: https://fivepminus.org/.

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